• Ephrata Rescue
• After meeting with Ian and his family, The Ephrata Area Rescue Services made it their goal to help provide a home that will be designed specifically for Ian's needs.


• EB Info World
• The mother of a child with a dreadful and devastating genetic skin disorder called epidermolysis bullosa not only advises and helps in taking care of these children but also provides pages that show pictures of them, memorials along with extensive information about the disorder.


• National Institutes of Health
• The mission of the National Institute of Arthritis, Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.


• DebRA
• This Web site is your entry point to the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families